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WHY campaign 16: WHY disability terms should be constantly changed?

This Why? is a bit more for Hungarian speakers, as we are discussing Hungarian terms of disability. But it can also be exciting to follow the changes in Hungary as a foreigner. Is it just Hungarian or is it a general phenomenon? We look forward to your comments below.

I could ask the question “what shall I call you”, if I want to quote our great poet Petőfi.

First, a little about the naming conventions we currently use.
There are two terms we use for disability in Hungary today: perhaps the most accepted is person living with disability. Why? Because it expresses that I have a disability – in my case a visual impairment – that is not part of my personality, but that I live with.
The other most commonly used term is a disabled person, which is used in legislation, literature and official places.
I fully agree with those experts who take the view that the two terms most commonly used today should be used in conjunction with the words “person”.

Previously, the word disabled was used quite naturally. Opinions are very divided on whether this is offensive or not. What is certain is that nowadays the word is used by many people as a abusive word, and has unfortunately become a kind of slang.

In general, the term injured is often used, but I think it is appropriate when used in conjunction with the type of disability, such as mobility impaired, visually impaired, hearing impaired. In itself, ‘injured’ can strengthens a damaged consciousness. Or it may not indicate an existing disability, but a temporary injury following an accident. In this way, a bruise or cut is also an injury.

The starting point however, is the use of now socially unacceptable terms such as stupid, crazy, cripple or idiot. Indeed, in the 19th century, these were common everyday and technical terms!
Stupid was the word for dumb, and then the word was applied to the mentally handicapped, but not in a pejorative sense, simply as a term. The same goes for idiot, used for people who didn’t understand social rules because they had a lower level of intelligence. And cripple was a general term for the physically handicapped.
The first institution for the mentally handicapped opened its doors in 1875 in Hungary in  Rákospalota under the name of “The First Hungarian Institute for the Education and Care of the Stupid”.
And in the early 1800s, a “public madhouse” was founded, which, according to the custom of the time, excluded disabled people from society and locked them up in institutions.
Another noteworthy term from József Roboz is the “weakly able”, which he mentions as a title in the first textbook he wrote on the concept of differentiated education.

Disease or condition? The question is a very good one, because I think disability is a condition that is either congenital or acquired later, i.e. it has been around for a certain period of time. In fact, it is usually the result of a disease, which is why I think the word ‘condition’ is more appropriate for disability.

There are also many different names for the types of disability. Each type of disability can be divided into several subgroups in order to distinguish the degree of disability. But it’s very much up to the individual person with a disability to decide which one they feel is their own, or which one is offensive to them. For example, I belong to the blind subgroup of the visually impaired, but I prefer to be called visually impaired. It’s worth remembering that we don’t need to know how much a visually impaired person can or cannot see, or how disabled a disabled person is, whether they are in a wheelchair or use a cane. It is therefore easiest to use the generic terms for a particular group of disabilities, to avoid awkward situations.

Why are names important? The most important thing is to always be respectful and to always respect the human dignity of the person concerned when referring to people with disabilities. Not just in their presence.

And back to the basic question, why do we have to keep changing the terms?
The main reason I think is, that society is constantly picking up on the technical terms originally used for people with disabilities. And they start to use it in hurtful, pejorative terms – mostly by able-bodied people to each other. It’s especially common for young people to call each other ‘disabled’ if someone doesn’t understand something the first time, or simply to insult or belittle. The same change has happened to our words ‘stupid’, ‘lame’, ‘cripple’, ‘crazy’, etc.
And people with disabilities themselves, and the profession dealing with them, now have to come up with particularly complex, unremarkable and strange ways of putting a name to what was and is a simple, understandable name.
Isn’t that crazy too?? Instead of fleeing forward, we should be educating society in kindergarten, school, family and everywhere. So that they stop throwing around words about people with disabilities, their condition, when they want to insult someone.

Written by Evelin Almádi and Veronika Pataki, also based on Panna Kaszás’ university thesis

Study tour in Pécs on our Hidden City project

Our Polish and Czech partners visited us for a three-day study tour in Pécs. In the framework of our project “Walk in our shoes”, supported by the International Visegrad Fund, we presented our Hidden City Tor-Tour to our project partners as a best practice.

On a beautiful sunny morning of the meeting, Gergő Berkes the leader of the Hidden City Tor-Tour, and his support partner Zoltán Borsodi gave a walk through the city centre, from a barrier-free perspective. And that afternoon, in our BeFogadó community space we discussed the experiences so far, listened to the Polish and Czech project reports and planned future tasks. Even a tasting of Pécs wines and an accessible visit to Cella Septichora fitted into our programme. 🙂

The study tour was the first step to visiting each other. The People First Association had previously provided an online training to Fundacija Sowelo and EYCB members on how they could create similar sensitizing city-walks. Now they have been further helped by seeing us lead a Hidden City Tor-Tour live. Fortunately, we have enthusiastic partners who not only enjoyed the walk, but also gave us very useful opinions and suggestions for improvement!

In the current phase of the project, partners have developed their individual methodologies to organise their own Hidden City Walks.
We are looking forward to the next study tours in Poznan/Poland in June, and Vrchlabi/Czech Republic in August, to see what the Polish and Czech versions of the Hidden City look like!

Thank you for being here and we’re so glad you enjoyed our city!

News from Poland

“We are still working on improving our city-walk. Monika has joined the
project team! We are very excited to start this collaboration.

Monika is active in supporting people with disabilities and has a lot of
experience in guiding groups. Participating in our project will allow
her to strengthen her competences.

We are actively preparing for the Pécs visit. Together we are
familiarising ourselves with materials and analysing best practices in
order to be able to participate sufficiently in the visit.

We can’t wait :)”

CODE Erasmus+ international project

Project title:
CODE – aCcessibility Of financial services for persons withDisabilitiEs
Foster social and financial inclusion through strategic partnership. Promoting joint initiatives among stakeholders based on the exchange of good practices and skills.

Project duration:
01.12.2023. – 30.11.2026.

Partner organisations:
Chambre de Commerce Italienne de Nice (COO) – ITALY
FondazioneIstitutodei Sordi di Torino ONLUS – ITALY
Fondazione Luigi Clerici  – ITALY
Cooperation Bancaire Pour L’europe – BELGIUM
Atlantis Engineering S.A. – GREECE
Association De Patronage De L’institut Regional Des Jeunes Sourds Et Des Jeunes Aveugles De Marseille – FRANCE
Fundacio Privada Trinijove – SPAIN
People First Közhasznú Egyesület Pécs – HUNGARY

Financial inclusion is a challenge facing most EU countries. It was therefore essential to establish a broad transnational cooperation involving 8 relevant organisations from 5 different countries. In this way we are trying to enable this socio-economic challenge to be overcome.

Project summary:
The project aims to provide persons with disabilities with guidance to better access financial services and documents, and to adjust the financial services and products currently available to their needs.
Target groups of the project:
– persons with disabilities: the project aims to facilitate their understanding of the financial and banking sector through financial literacy training on the types of products and services available to them. The target group will be able to access the training materials through a web platform and related application.
– reaching the target group is also helped by the involvement of disability support networks and vocational training centers. These networks can benefit from the professional materials created and offer new services and support tools. At the same time, they can acquire new skills and knowledge in this field.
– vocational training trainers/instructors and service providers: they will have access to innovative training on access to financial services for people with disabilities. This will allow them to expand their course offerings in this direction.
Indirect target groups:
– financial institutions and banks, for whom the guidelines on the accessibility of financial services are useful information. This will enable them to design and implement more accessible services for all, while broadening their audience and reaching target groups that they have not yet reached. At the same time, managers and staff can acquire new skills through the project.
– SMEs (small and medium sized enterprises) and chambers of commerce, be able to develop good practices for integration in the workplace, learn about and apply good practices.
– political decision-makers who can further reflect on its social use by learning from the good practice training programme on financial inclusion for people with disabilities.

Involving target groups is a key element of the project, so stakeholders are involved in the national teams from the start as focus groups, brainstormers and testers.

Project outputs:
The innovation of the CODE project is that it promotes the application of the universal design model and social inclusion to the financial, banking, insurance and business environment. CODE is a pilot project that aims to enhance financial literacy among people with disabilities.
It will foster inclusion of the target group in the financial system and access to financial products/instruments by the collection and sharing of best practises of inclusion at EU level (IO1) and the creation of an interactive map for users i.e. a platform and an app that everyone can use (IO2). The project will finally create a new training course composed of modules and guidelines to be used by trainers and people with disabilities to deal with banking institutions (IO3).

The main task of People First Association as a Hungarian partner in the project is:
As in all international projects, our main task is to promote the principle of “Nothing about us without us”. In addition, our main tasks are the design and development of the CODE inclusive platform in the framework of the training course and digital tools, in cooperation with the Greek partner. And in the framework of the piloting of the course, the final fine-tuning of the materials developed with the help of our association members.

👉Follow us on Facebook too: CODE project

 

 

The communication Platform is ready to launch

The first version of the common Platform, which presents the project, the International Visegrad Fund and international best practices has been prepared. It also acts as a discussion forum for partners. The Polish and Czech teams will add their ideas to the website developed by the Hungarian partner, and then the joint work on the Platform can start. We plan to make it public and open to all interested parties after the project closes.

The Polish team is almost complete with its own sensitising city walk, but the Czech team has also been formed and is developing contacts with the city government.

We will meet in Pécs in May to present the Hidden City Tor-Tour as a best practice of the Hungarian People First Association. We also agreed on the details of this in the March online meeting.

 

Polish sensitisation tour already in testing phase

News from Poland:
The Polish team Fundacja Sowelo started developing our own version of a sensitizing city tour. Our experts designed the route and evaluated the accessibility of the various attractions. Now the tour is in the testing phase.
We are excited about the possibilities and ideas that arise as we work together on the project.

 

An international group spreads the word about Hungarian “Hidden city”

“I never used to care about what was going on behind my back, but while sitting in a wheelchair it has become the most important thing”
“Somehow it never occurred to me that you not only have to go up a ramp, but also down. And it’s scary in a wheelchair”
“I will look at the world in a completely different way after trying the white cane”
A large international team is taking these experiences home with them by trying the People First Association’s Hidden City Tor Tour again. (https://peoplefirst.hu/blog-post/rejtett-varos-tor-tour-a/)

Once again, they will pass on to many people those useful experiences that are not enough to say, they must be lived!

The team, coming from several countries, participated in a conference entitled “Disabilities and abilities framed by context” in the framework of the EDUC project of the University of Pécs/Hungary. At this conference Veronika Pataki, president of People First Association, presented our Accessible Pécs Database (https://peoplefirst.hu/akadalymentes-pecs/) to the international audience. The additional programme of the conference (MICE-Tourism) was the Hidden City Tor-Tour in the evening, led by our vice-president Gergő Berkes in his usual uplifting mood.

This is a fundamental objective for us, to offer our Hidden City Tor Tour as an accompanying professional programme for conferences, meetings and events in the framework of MICE Tourism. This programme on 16. January is a good example of this.

A pécsi Király utcában kihelyezett makett körül áll a nemzetközi csapat. Este van, sötét, a háttérben a kirakatok fényei csillognak. A makett a teret ábrázolja. Gergő, a túra vezetője, kerekesszékben ül a makett mellett és mesél az érdeklődő csapatnak. Néhányan már felvették a csökkent látást szimuláló szemüveget, a fehér bot is előkerült.

 

The training is complete, the project development starts

Now the “Walk in Our Shoes” project will be really exciting! 🙂
The third training session held yesterday (05.12.2023) concluded the online training, during which the People First Association prepared the Polish partners Sowelo and the Czech partner EYCB to create a sensitizing city tour similar to the Hidden City Tor-Tour.

In addition to the project coordinators, the online trainings were attended by people working in the future Czech and Polish sensitization projects, people with disabilities, future tour guides and organizers. During the interactive trainings in a good atmosphere, we managed to get to know each other and the project better.

Now the Czech and Polish partners are developing the methodology and variations of their own sensitizing city tour, defining their target groups and marketing methods. In addition to the training, the training material developed by the People First Association will help them with this, in which they can find detailed information, suggestions and experiences.

By February 2024 we will see what great ideas our Czech and very active Polish partners come up with. We’re excited to look forward to it!
Of course, the experts of the People First Association will mentor the work of the partners throughout, we will hold monthly or on-demand online meetings.

Négyzet alakú logo. Baloldalon fönt szöveg: Walk in Our Shoes. Inclusive city adventure. Mellette jobbra fönt a magyar zászló, alatta balra és jobbra a lengyel és cseh zászló rajzolt képe. Középen egy rajzolt kerekesszékben ülő figura. Szemben vele, a magyar zászlóba belefolyik egy sematikus lépcső. Ezt nézi a kerekesszékes ember.

WHY Campaign 15: WHY are old aunts with rolling bags “pushing”?

In this WHY?, we make a small exception, since we are not writing about people with disabilities.
Or is it? Decide for yourselves by the time you get to the end.

You know that accessibility is important for a very wide target group, including the elderly. Thus, we share our lot and share a common goal in many things. This article is therefore about the elderly.

We often hear at bus stops, on buses, trains, on any means of transport: “why do the elderly push so hard when they take off?”, “why do they travel during rush hour, they don’t get there at other times?”.
Let’s think about this a little bit through with a story of my own, following the few days of my 85-year-old lively mother with hip replacement.

Let’s first look at that particular “push”, i.e. why do older people try to get on vehicles first? You wouldn’t think so, but there is a very practical, well-thought-out reason.
As soon as they board, they must sit down immediately – so you don’t sit in the front seats, but to move back in the bus! The bus drivers don’t wait, even if they could, they start immediately, at high throttle, and if the old man hasn’t managed to sit down yet, it will be a big fall. Understandably, at 85, they are no longer blessed with lightning-fast reflexes and rock-hard muscles. And the fall at this age can even be fatal.
The same when getting off the bus. You don’t have to be angry if they get out the front door – where you want to get on – because there’s no time or opportunity getting to the next door with great difficulty. Bus drivers are still ignoring them.
…………there are countries where it does, such as London, which is much busier than Pécs. Now what can I say to that? 🙁

Come the hated “witch-tank”. (Unfortunately, in Hungary this is the common name for the shopping bag on wheels, which is usually used by elderly aunts.) The very name is insulting. Honestly, if it weren’t for this hostile, contemptuous vibe about this handy rolling bag, I’d buy one too. And that’s what I’d be shopping with, not dragging my shoulders with all sorts of amorphous bags.

You wouldn’t think of this either, but the rolling bag has a very important function. It is also a support, a stable stick for the elderly person.
On the one hand, they really couldn’t stand flour and potatoes in a hand-held or shoulder-hanging bag. On the other hand, they take it with them many, many times, as safety. Because of this bus driver style(lessness), this is a reliable support when they need to get up well before the bus stop. On the street, support comes in handy even in case of a swaying or dizziness. The stable and practical rolling bag also serves as an excellent support when climbing stairs.

That’s the secret.

And now a few words about how to help an elderly person correctly?
– The basic rule here is to ask if they need help, e.g. when boarding or getting off the bus, or if they are standing out of breath in the middle of the pavement.

– Let the elderly get on the bus first, now you know why.

– Don’t sit down on one of the front seats, leave them free for those who really need to get to safety as soon as possible. Walk back in the bus and find yourself a seat.

– Do not immerse yourself in your phone sitting on the bus, saying, then everyone will solve their own problem, the main thing is that you are sitting. You can stand a few stops, at 85 years old you can’t do that anymore.

– Please don’t roll your eyes, don’t make faces, and especially don’t speak up, as mentioned at the beginning of this article. The old man feels, sees, hears this. Not only does he have to face the fact that he can no longer do many things in old age, he is deeply offended for it. Tragic social attitude.

Always think: you will also be old and you will get back what you give now!

Written by Veronika Pataki

Training continues

We met as acquaintances on November 21st at the online training of the international project “Walk in Our Shoes” supported by the International Visegrad Fund.
This time it was about the structure of sensitization tours to be held together.
After each training session, Sowelo Polish and EYCB Czech partners receive the related part of the training material developed by the People First Association. Thus, after the 3 online training sessions, the complete curriculum is compiled.
We will next meet online on December 5. It will be good! 🙂