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WHY campaign 14: WHY is boarding a bus in a wheelchair an extreme sport?

“I’ll catch a bus and I’m there” – but it’s almost never that easy. Especially if you bring your own chair or are a stroller driver.

So:
you catch a bus. You check the timetable, buy your ticket, go to the bus stop and hop on. If there’s a seat, you sit down, if not, you stand. Sometimes you’ll stand on my spot, which is fine if I don’t need it. You signal, you get off. On a crowded bus, of course, it’s all a bit more difficult.

I figure out where I want to go. I have to look for a stop I can get to with my wheelchair. I check the website/app to see when there’s an accessible bus on that line and hope that there really is one. Not always.

Oops: even when I ask the service provider in advance to send me an accessible bus at such-and-such a time, mistakes can happen: despite all the phone calls, e-mails and confirmations, the right vehicle does not arrive. Then all my plans fail. 

But now there is a good bus stop, the right kind of a bus just arrived, we are ready to go! The bus driver gets out, pushes down the ramp for me, helps me roll up if I need it. I maneuver myself to my place, put on the brakes, buckle myself in or the bus driver will help me. Ramp up, driver behind the wheel. When I get off, same thing in reverse. 

Nice plan, except there’s the ’oops’ factor: 

Oops! The bus is full and you’re in my spot. Then, if possible, the other passengers should move over. If not, or if the number of wheelchairs on that bus is already full, I’m stuck while others can still get on – and squeeze into my designated place as third. 
This can become an extreme adventure in the heat, rain and cold, because my body works differently! 

Oops! The bus driver is not well informed and refuses to let me on because he says my electric wheelchair is a scooter and you are not allowed to get on with a scooter. They might be not aware of my limitations and causing physical injury because they don’t know that I can’t feel, move my legs or hands or have difficulty moving them. 

Oops! My fellow passenger is not paying attention and they cause me injury or damage to my wheelchair. The wheelchair that allows me to get around. Which is not easy or cheap to fix. When was the last time you got stuck between four walls because someone stepped on your foot? 

There are many standing places and seats on a bus, but spots for wheelchairs, if any, are limited to one, rarely two. I can’t move back or in, stand and hold on, while for able-bodied people it’s much easier and it’s easier to move suitcases, trolleys, saplings from the place reserved for me than to put me on the hat rack! 

Much the same applies to prams, the pram is also the safe seat for the small passenger, with its own brakes and seat belt, and staff who, although get on easier, sometimes they need help too! 

Then there are the walker users (a kind of rolling walking frame, with brakes, seat, sometimes a basket), who can’t suddenly put the walker in their pockets or travel standing up and holding on to the handrails. Sometimes they also strap themselves into the wheelchair spot if they have no better option. 

We, wheelies: wheelchair users, walker users, pram drivers, ask you to take care when we come along and help us to get on and off the bus as easily, safely and quickly as possible, to take our seats – so that there are no more “oops”-es!

Written by Hilda Kerekes

WHY campaign 13: WHY do wheelchair users get on the plane first?

And let’s add, they get off last. Moreover, not only wheelchair users, but also the elderly, families with children and people with reduced mobility have the opportunity to get into the plane about 10-15 minutes in front of everyone. Annoying, not understandable? Let’s look at the WHY?: 

Air transportation, contrary to the information of the companies, has never been, and to this day it is not accessible, for the ones in need. The space constraints, which are typical of a passenger plane, significantly limit any full accessibility, but since the companies’ profits would be significantly affected by the creation of possible extra spaces, they were not even interested in it.  

Traveling in a wheelchair is a multi-level challenge. When you get into the plane, you lose control of your most important aid, you don’t know how it’s going to be handled, what’s going to go wrong with it, will it arrive at the next stop at all?! Airlines have only limited liability for checked medical equipment, with the maximum compensation set at the same amount as for other baggage. The price of a complex wheelchair can be up to several million HUF, but if it is lost or damaged, the compensation is only possible up to a maximum of HUF 600,000, of course, this is also only after playing several heavyweight arm-wrestle matches.
A wheelchair bound customer on an aisle-chair, tied with three straps, to be carried into an airplane seat
How does a boarding happen if you use your own wheelchair? It is not up to the airlines to help with this, airports employ specialized companies to assist passengers in need. Thus, the standard of service varies from airport to airport. Budapest Airport has particularly good reviews in this regard. 

You can’t travel on the plane in your own wheelchair. When boarding, a wheelchair specially adapted to the size of the plane is brought and the passenger must be transferred to it or lifted with assistance. If he or she needs to be lifted, the passenger is fastened with several straps to the chair, similar to Hannibal Lechter from the movie The Silence of the Lambs, in fact, only the muzzle is missing from the whole picture.  

Why are we getting in the first place? Not primarily to protect ourselves from the embarrassment of various awkward postures. But most importantly, the helpers have to pull the special chair that just fits in the corridor of the plane, just as they pushed it in, out of the plane, which is not possible with hundreds of people standing behind them in a narrow space where they, too, can barely fit. Well that’s it!

There are also cases when you travel somewhere with several connections, and due to the tight time at the transfer, you can’t reach the gate at least a quarter of an hour before boarding. In this case, the passenger in a wheelchair is the last to board.  

And when you get off, it plays backwards. The wheelchair passenger is the last to leave the plane, often after long minutes and sometimes up to three-quarters of an hour after everyone else. Unfortunately, the post-Covid labor shortage is also noticeable at airports, so there is not enough staff to serve the suddenly increased number of passengers and you have to wait. 

In summary, you can fly and should fly with disabilities, and anyone who was once struck by the smell of kerosene will travel as long as they can, but we must always be prepared, know the process, as well as our rights if anything happens during the trip. 

Thanks to our highly experienced association member Zoltán Borsodi for the description!

Soul Mate Erasmus+ international project

Project title:
Soul Mate
Mental care at work for people with disabilities 

Project period:
01.11.2022 – 31.10.2025   

Supporter:
Erasmus+
KA220-ADU – Cooperation partnerships in adult education 

Partner organisations:
KOPF, HAND und FUSS gemeinnützige Gesellschaft für Bildung mbH, GERMANY
People First Public Benefit Association, HUNGARY
SATIS, ITALY
Уърк Уит Ийз EOOD, BULGARIA
VSBI Verein zur sozialen und beruflichen Integration e.V., GERMANY 

Project summary in a nutshell:
People with disabilities remain one of the most disadvantaged groups in terms of employment and mental health.
Soul Mate addresses both issues combined by improving people with disabilities ́ opportunities to promote mental health and consolidate their ability to work or be an entrepreneur, thereby creating a prerequisite for a self-determined life.
Since there a no service specifically tailored to their needs we want to close this gap in the mental health care available to this target group. 

Soul Mate will provide new knowledge and concrete assistance on the topic of mental health at work for people with disabilities. This cost-free and easily accessible support service will contribute to improving their living and working situation.  

Aligned with the UN Sustainable Development Goals, Soul Mate promotes inclusion and diversity in education and work  

By combining each other’s expertise and skills partners will develop: 
-a guidebook for the e-learning and network software and contents
-barrier-free e-learning mental health training programmes for employees, self-employed or employers with disabilities
-a transnational virtual network for experience & knowledge 

 A little more details about the project:
Soul Mate enables inclusion and diversity in education by providing a barrier-free learning environment on the one hand and addressing the issue of mental health in the workplace with a special focus on people with different starting points on the other.  

It is clear that people with disabilities are still predominantly excluded from the digital world, which has a huge impact on the social and economic inclusion of people with disabilities in our society. 

Mental ill health – which includes psychological problems and stress – is an important issue in all EU member states, as it represents a major burden for individuals, society and the economy.Diagnoses of depression and burnout have risen sharply in recent years. Every year, more than one third of the entire EU population suffers from mental disorders. 

Our project combines both issues and addresses them by improving their opportunities to promote mental health and help consolidate their ability to work or be an entrepreneur. 

Of course, people with disabilities are just as, if not more, affected by mental ill health. Because they embody two socially still stigmatized characteristics – disability and mental illness – they are at higher risk of stigma and discrimination, which may discourage them from seeking support. 

Since people spend at least one-third of their lives at work,  it can be an ideal environment for mental health promotion and preventive measures. However, there are no services specifically tailored to the needs of workers with disabilities.The project aims to fill this gap by providing a workplace mental health training program for employees, self-employed individuals, or employers with disabilities. 

In the long term the projects objectives are:  
– to consolidate the target groups participation in the working life and reduce the risk of deterioration or illness, thus contributing to social inclusion and safeguarding the right to a self-determined life.
– to eliminate factors at work that threaten mental health by maintaining awareness and ongoing exchange about the topic.  

Target group:
– Working people with disabilities who are mentally ill. especially want to target people who do not have access to certain mental health care services because they are not available in easy-to-understand language, sign language, with subtitles or audio description. Our target population is not required to have a medical diagnosis attesting to their need for mental health support.  
– Self-employed individuals with disabilities who are mentally ill
– Employers who employ people with disabilities
– Medical environment
– Multipliers such as disability representatives, business associations, etc., 

The main task of the People First Association as a Hungarian partner in the project:
People First takes on the task of including the perspectives of people with disabilities from the beginning. This is important because the demand “Not about us without us” is a key principle in developing inclusive outcomes.

The integration of the peer perspective is discussed in the guidebook, but also in the tutorials. People First will be responsible for creating the digital tutorials, with the various “sub-tasks” shared among all partners.